Since 2010, our family has been helping heart families through our successful and much loved event, Noah’s Festival of Life. Since its inception, it has raised over $100,000, in a grass-roots effort, to pay it forward by helping other heart families like ours. In 2018, one year after Noah’s passing, Live Like Noah Foundation was founded, striving to carry on Noah’s legacy of goodwill and continue her work of advocacy for the #1 birth defect worldwide, Congenital Heart Disease.

UCLA MATTEL CHILDREN’S HOSPITAL LYMPHATIC INTERVENTION PROGRAM

In memory of Noah, UCLA Mattel Children’s Hospital started a pediatric lymphatic intervention program, the first of it’s kind on the West Coast. The Live Like Noah Foundation works to provide funding for training, research, and education for this program. We collaborate closely with the lymphatics team lead by Dr. Sanjay Sinha and Dr. Ed Lee, both of which are part of our medical advisory board. Since we began our foundation in 2018, Live Like Noah has donated over $70,000 to this program.

FINANCIAL GRANTS

Alleviate the financial burden of medical expenses and traveling for treatment. There are currently only two centers in the US (Children’s Hospital of Philadelphia and UCLA Mattel Children’s Hospital) that have dedicated programs to treat children and adults suffering from lymphatic disorders such as Protein Losing Enteropathy (PLE) and Plastic Bronchitis (PB), both of which are caused by their CHD. We know the financial hardship of dealing with travelling to receive necessary treatment. We offer grants to families, in need, who must travel to receive these lifesaving procedures.

Awareness through apparel

Noah taught us a lot about life and she did so often through her actions. Our lives were rendered through her eyes, teaching us daily what truly matters—goodwill towards others. We believe spreading awareness of goodwill is so important, especially in today’s climate. Our Live Like Noah line focuses on motivating others to be kind, selfless, brave and to be a force for good.

reading is healing

Reading allowed Noah to escape to another world and ‘leave’ her hospital room. It freed her mind from the physical and emotional trauma she faced with every hospitalization. It empowered her to think beyond where she currently was. It also empowered her to write. In Noah’s 13 years, she wrote six children’s short stories. We believe these stories should be in the hands of every child. We believe her stories have the capability, like many books do, to serve as therapy for those in the hospital. It is our goal to publish each story as a fully illustrated children’s book. 100% of profits from the sale of Noah’s books will help fund our Reading is Healing program, providing Noah’s short story books to children’s hospitals. Hop’s Case of Being Different has been published in both English and Spanish, and distributed to over a dozen children’s hospitals in the US and Canada.